FIFTY YEARS IS A LONG WAIT: ISN'T IT ABOUT TIME FOR LUPUS? AS I SEE IT By MARIANNE CLAY from Sunday, January 11, 2009, Harrisburg Patriot Eight autumns ago in her senior year of high school, my then 17-year-old daughter began struggling to get her backpack on and off. Moving her arms and shoulders hurt, she explained, because she was folding so many jeans at her job at The Gap. Or maybe, she added, she needed a new mattress. A few weeks later, when her long hair began to fall in piles of yellow silk in the bathroom sink and dark circles deepened under her eyes, I dragged her to the family doctor for a mono test. But she didn't have mono. By Thanksgiving, she'd lost her enthusiasm for play rehearsals, for being yearbook editor, and for hosting exchange students. She didn't stop, but instead of grinning and chatting about her activities, she was soldiering through. And what a tired soldier she was. During Christmas vacation, when her fingertips turned as black ...
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